When Jyothi got sick this time, she was
turned away several times from the government hospital. She weighed
about 25 kg (60 lbs) and could barely walk, but even in that
condition she was not able to find a doctor willing to help
her -- being HIV+, this still happens in India. We took her to
a non-profit organization specializing in HIV patients, where
she finally got medical attention. She was started
on atiretrovirals, as her CD4 count was only 75. Another complication
was the hospital's requirement (as all hospitals in India require)
that a family member stay with her the entire time she was admitted
-- for Jyothi, this was impossible as her brother refused, her
niece often disappeared to work to earn money for her dad, and
Jyothi had no sister or mother to help out. We cobbled
together a solution that included help from our other street
women, but the hospital's frustration over the situation didn't
help matters. Jyothi's condition never really improved and she
took a turn for the worse after a couple of weeks in the hospital,
when she started hallucinating, failed to properly take her medicine,
and lost her appetite.
After being diagnosed six weeks into her hospital stay with
tuberculosis, she began treatment but by that time it was too
late. Who knows if she would have survived if she had been diagnosed
earlier. It was a sad ending for an Indian woman who
had lived a very hard life. She simply wanted to make ends meet
in a society that has little compassion for women abandoned by
their husbands. In the end, we found an excellent terminal care
facility for HIV patients in Bangalore (about three hours away)
for Jyothi, and although she lasted only a few days there, she
was at least comfortable and with caring people when she passed
away. The day before, we had visited her and although she was
unconscious, she fluttered her eyelids when we talked to
her, so we hope that she knew we were there with her to say goodbye. |